Nilotinib – An Encouraging Move

Donna called me this morning with more on the progression of nilotinib research to PD treatment.  Nilotinib is currently used for chronic myelogenous leukemia , a cancer of the white blood cells and early studies showed it as promising,  Now, Georgetown University and its researchers announced there will be a collaberation between the Michael J. […]

A New Year for W WPD Begins

Parkinson’s Foundation of the National Capital Area Update Wow, has this summer flown by! I can’t believe it’s already time again for the Parkinson’s Foundation of the National Capital Area’s annual Walk-Off Parkinson’s Fund and Awareness Raising Event.  This year’s Walk will be on September 18th in Washington, DC at Nat’s Park, home of the […]

Live Your Life!

LIVE YOUR LIFE! This was the upbeat message brought to our group by one of our area’s pre-eminent Movement Disorder Specialists, Dr. Drew Falconer.  Dr.  Falconer, along with his partner, Dr. Sean Rogers, make up the INOVA Movement Disorders Center. ” Dr. Drew”, as he is sometimes called, was a favorite speaker from last year and […]

A Rockin’ Good Time

Our April visit with Karl and Angela Robb was  a wonderful blend of experience, education, conversation and laughter.  Our speakers brought a lot to the table.  Karl. author of the well-loved book, “A Soft Voice in a Noisy World”, was diagnosed when he was in his early 20’s, twenty years ago!  He’s been down that long […]

April Meeting is This Wednesday

Meeting Reminder Wednesday, April 6th 1pm -2:30pm Contact Us for Meeting Address Reston, VA — ​​Featuring our guests, Karl and Angela Robb. Karl will have copies of his book , “A Soft Voice in a Noisy World” but is also happy to sign copies that you bring with you. Please return any borrowed books you’ve […]

My Friends, This One is for You!

Hey, all you group members out there, this post is dedicated to YOU! When we first met, we were so happy to find that there were others out there facing some of the same challenges as ourselves.  We weren’t alone in the daily slog of tackling our Parkinson’s Disease.  To repeat one of my favorite […]

Dear Abby – Advice from the Membership: Starting on Rytary

Every so often  a member will ask to speak to anyone in the group who has experience with something they are going through.  Usually, I broadcast the question and then forward who they could contact.  Yesterday’s subject was put to us as this: Opinions and advice requested on this Rytary question.  (Rytary is a new […]