National Parkinson Foundation
200 SE 1st Street
Miami, Florida 33131
Toll-free Helpline: 1-800-4PD-INFO (473-4636)
Fax: (305) 537-9901
E-mail inquiries: firstname.lastname@example.org
American Parkinson Disease Association
135 Parkinson Avenue Staten Island, NY 10305
Phone: 800-223-2732 or 718-981-8001
Parkinson’s Disease Foundation
1359 Broadway, Suite 1509
New York, NY 10018
Phone: (212) 923-4700
Fax: (212) 923-4778
Parkinson’s Information Service (PINS) Toll-free Helpline:
Available from 9 AM to 5 PM ET, Monday through Friday, PINS is a convenient, anonymous resource for information about Parkinson’s disease.
The Michael J. Fox Foundation for Parkinson’s Research
Grand Central Station
P.O. Box 4777
New York, NY 10163-4777
Toll Free: 1-800-708-7644
Parkinson’s Action Network
1025 Vermont Ave. NW, Suite 1120
Washington, D.C. 20005
PAN educates the public and government leaders on better policies for research and an improved quality of life for people living with Parkinson’s.
Parkinson Foundation of the National Capital Area
7700 Leesburg Pike, Suite 208, South Lobby
Falls Church VA 22043
Aware In Care
Your doctor wants you to get your medicines on time. In the hospital, 3 out of 4 people with Parkinson’s don’t. Change the odds. Get your FREE Aware In Care Kit from the National Parkinson’s Foundation. PFNCA also has some available at their office.
Johns Hopkins Parkinson’s Disease and Movement Disorder Center
The Johns Hopkins Hospital
Department of Neurology and Neurosurgery
601 N. Caroline Street, Room 5064
Baltimore, MD 21287
Appointment Phone: 410-502-0133, option 2
SOME SITES WITH INFORMATION ABOUT CLINICAL TRIALS
clinicaltrials.gov -Lists world-wide studies, sponsored by NIH
foxtrialfinder.org – Sponsored by the Michael J Fox Foundation, this is a matching tool to help volunteers find the right trial for their need.
pdf.org/en/clinical trials ` Sponsored by the Parkinson Disease Foundation
OTHER SITES RECOMMENDED BY MEMBERS
VIARTIS – Recommended by members as a good search source about Parkinson’s. It’s a source of abstracts from medical journals about current research on Parkinson’s if you indicate that’s the category you want when you register.
DAVIS PHINNEY FOUNDATION – Offers free copies of the book, Every Victory Counts.
Thanks to the Friends in Frederick Parkinson’s Disease Support Group for the idea of beefing up the site and for sharing the information. Check them out at fifpdsg.org .