PD- related Links and Resources

Parkinson Foundation of the National Capital Area (PFNCA)
8830 Cameron St. #201, Silver Spring, MD 20910
301-844-6510
pfnca@parkinsonfoundation.org

Parkinson Social Network 
A local resource, Parkinson Social Network is a new nonprofit corporation, established in late 2017, whose purpose is to educate, advocate, support and enrich the lives of those touched by Parkinson’s disease. They offer social events and participate in outreach events. You can subscribe to their weekly e-newsletter, Out & About with Parkinson’s, through their website, or contact Sonia Gow at 571-286-5000 or Sonia@ParkinsonSocialNetwork.org for more information.

Parkinson’s Foundation
200 SE 1st Street, Suite 800, Miami, Florida 33131
Helpline: 1-800-4PD-INFO (473-4636)
1359 Broadway, Suite 1509, New York, NY 10018
(212) 923-4700
contact@parkinson.org

Aware In Care
Your doctor wants you to get your medicines on time. In the hospital, 3 out of 4 people with Parkinson’s don’t. Change the odds. Get your FREE Aware In Care Kit from the Parkinson’s Foundation. PFNCA also has some available at their office.

American Parkinson Disease Association
135 Parkinson Avenue, Staten Island, NY 10305
800-223-2732 or 718-981-8001
apda@apdaparkinson.org

The Michael J. Fox Foundation for Parkinson’s Research
Grand Central Station, P.O. Box 4777, New York, NY 10163
800-708-7644

Johns Hopkins Parkinson’s Disease and Movement Disorder Center
The Johns Hopkins Hospital
Department of Neurology and Neurosurgery
601 N. Caroline Street, Room 5064
Baltimore, MD 21287
Appointment Phone: 410-502-0133, option 2

SOME SITES WITH INFORMATION ABOUT CLINICAL TRIALS

clinicaltrials.gov – Lists world-wide studies, sponsored by NIH

foxtrialfinder.org – Sponsored by the Michael J Fox Foundation, this is a matching tool to help volunteers find the right trial for their need.

OTHER SITES RECOMMENDED BY MEMBERS

VIARTIS A good search source of abstracts from medical journals about current research on Parkinson’s if you indicate that’s the category you want when you register.

DAVIS PHINNEY FOUNDATION – Mission is to help people with Parkinson’s Live Well. Offers free copies of the book, Every Victory Counts. 1-866-3578-0285 contact@dpf.org

Thanks to the Friends in Frederick Parkinson’s Disease Support Group for the idea of beefing up the site and for sharing the information.  Check them out at fifpdsg.org .

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s