Parkinson Foundation of the National Capital Area (PFNCA)
3570 Olney Laytonsville Road #490, Olney, MD 20830
301-844-6510
pfnca@parkinsonfoundation.org
Parkinson Social Network
A local resource, Parkinson Social Network is a nonprofit corporation, established in late 2017, whose purpose is to educate, advocate, support, and enrich the lives of those touched by Parkinson’s disease. They offer social events and participate in outreach events. You can subscribe to their weekly e-newsletter, Out & About with Parkinson’s, through their website, or contact 571-286-5000 or info@parkinsonsocialnetwork.org for more information about their offerings.
Parkinson’s Foundation
200 SE 1st Street, Suite 800, Miami, Florida 33131
Helpline: 1-800-4PD-INFO (473-4636)
1359 Broadway, Suite 1509, New York, NY 10018
(212) 923-4700
contact@parkinson.org
Aware In Care
Your doctor wants you to get your medicines on time. In the hospital, 3 out of 4 people with Parkinson’s don’t. Change the odds. Get your FREE Aware In Care Kit from the Parkinson Foundation. PFNCA also has some available at their office.
American Parkinson Disease Association
135 Parkinson Avenue, Staten Island, NY 10305
800-223-2732 or 718-981-8001
apda@apdaparkinson.org
The Michael J. Fox Foundation for Parkinson’s Research
Grand Central Station, P.O. Box 4777, New York, NY 10163
800-708-7644
Johns Hopkins Parkinson’s Disease and Movement Disorder Center
The Johns Hopkins Hospital
Department of Neurology and Neurosurgery
601 N. Caroline Street, Room 5064
Baltimore, MD 21287
Appointment Phone: 410-502-0133, option 2
SOME SITES WITH INFORMATION ABOUT CLINICAL TRIALS
clinicaltrials.gov – Lists world-wide studies, sponsored by NIH
foxtrialfinder.org – Sponsored by the Michael J Fox Foundation, this is a matching tool to help volunteers find the right trial for their need.
OTHER SITES RECOMMENDED BY MEMBERS
VIARTIS – A good search source of abstracts from medical journals about current research on Parkinson’s if you indicate that’s the category you want when you register.
DAVIS PHINNEY FOUNDATION – Mission is to help people with Parkinson’s Live Well. Offers free copies of the book, Every Victory Counts. 1-866-3578-0285 contact@dpf.org
Thanks to the Friends in Frederick Parkinson’s Disease Support Group for the idea of beefing up the site and for sharing the information. Check them out at fifpdsg.org .