Thank you for your responses about our meeting format. They were divided between two camps of thought: those of us who are unable to attend in-person meetings and are thankful for Zoom, and those of us who would prefer to meet in Reston but know the overwhelming tiredness and anxiety getting to and from these […]
Category: Parkinson’s Disease
January 5 Meeting Recap
During our January 5 meeting via Zoom, we got together and shared how living with Parkinson’s is different for us now than it was two years ago and how it is different from when we were first diagnosed. A few of us, some diagnosed 10+ years ago, talked about being more aware of our body […]
January 8th Meeting Announcement
Happy New Year everyone. I don’t know about you, but the year 2025 gives me pause. It doesn’t feel like that long ago we were celebrating the arrival of Y2K. How has another quarter-of-a-century passed? It was so good to see all of you who were able to join us for our holiday lunch in December. […]
November 6th Zoom Meeting Announcement
What a beautiful October we’ve had in the Northern Virginia area this year! Sunny, warm, the trees turning brilliant shades of reds, oranges, and yellows. And suddenly November has arrived with the realization we have a meeting scheduled this Wednesday, November 6 at 1:00 p.m. and that I need to get an announcement posted. Managing time, energy, […]
Notes and Resources from our Last Meeting
There were fourteen of us at our October 5th meeting via Zoom, including two new women, one who was recently diagnosed. Some of us live alone, some with spouses, and some in multi-generational houses that include sons or daughters and their spouses, as well as grandchildren. We talked about our various ages and stages of […]
October 2nd Zoom Meeting Announcement
Thank you for your patience and understanding about cancelling our September meeting. Our next meeting is scheduled for Wednesday October 2 at 1:00 PM via Zoom. Parkinson’s is what happens when we’re busy making other plans. How does this apply in your life? We are looking forward to hearing what everyone’s been up to these past few months […]
Support Group Meeting Update
It’s been a long, hot summer. Since our group does not meet in July and August, September usually heralds the start of our new year. We were scheduled to meet in-person on Wednesday, September 11. Our group facilitator and I realized several months ago that neither of us would be available to lead the group […]
Highlights of our May Meeting and Group Updates
At our May 1 meeting via Zoom, we welcomed Amelia Faraco-Hadlock, Deputy Legislative Director for Congresswoman Jennifer Wexton. Amelia has worked closely with Congresswoman Wexton on the bipartisan National Plan to End Parkinson’s Act to improve care and coverage for people with Parkinson’s disease. The Senate unanimously passed the Act on May 23. It will be sent to […]
May 1 Zoom Meeting Announcement
We are honored to welcome as our guest speaker this month Amelia Faraco-Hadlock, Deputy Legislative Director for Congresswoman Jennifer Wexton (representing Virginia’s 10th Congressional District). Amelia handles the Congresswoman’s Health portfolio and has been working very closely with Congresswoman Wexton on the bipartisan National Plan to End Parkinson’s Act. She is scheduled for the first 30 minutes of our meeting, […]
April 3 In-Person Meeting Announcement: Just-Us Share Time
Our next meeting on April 3 will be an in-person meeting in Reston and dedicated to Just-Us Share Time. Let’s talk about those self-conscious and embarrassing moments that come with Parkinson’s. We’ve all experienced them. How have you handled them? With humor? With resignation? With that fright, flight, freeze feeling of panic? With grace and dignity? Do you […]