I have had a few opportunities/challenges in the last few weeks, ones that require skill-sets I lack. What I have learned is that people in this Parkinson’s community are sharp, have had vast experiences to bring to any table, are generous with their time and talents and are delightful people to be around. Our July […]
FDA Approves New Deep Brain Stimulation Device
From the FoxFeed Blog , FDA Approves New Deep Brain Stimulation Device Posted by Maggie McGuire, June 16, 2015 The U.S. Food and Drug Administration (FDA) announced Friday that it had approved another deep brain stimulation (DBS) device for treatment of Parkinson’s disease and essential tremor. The Brio Neurostimulation System from St. Jude Medical works in […]
Parkinson’s Disease and Sleep Issues
I hope to see as many of you as possible at our meeting this week: Wednesday, July 1st 1pm – 2:30pm Same church in Reston, VA (New to us? Contact us for exact location.) Come be our experts on the issue of sleep – you know, that thing others do while you wait for morning. Well, […]
Women’s Conference
From Margaret DeJesus, of the Parkinson’s Disease Foundation: I just wanted to share with you and your colleagues, that applications are now open to attend the Parkinson’s Disease Foundation’s (PDF) first PDF Women and PD Conference, which brings together women leaders to learn about gender differences in PD, including sexuality and emotional health, and to […]
Looking at Life from Both Sides
We were blessed with a wonderful speaker at our June meeting, Susan Infeld. Susan is a registered nurse in the field of Faith Community Nursing and is a member of the Pastoral Care Team at the church where we meet. Faith Community Nursing (or Parish nursing) is an American Nurses Association specialty practice […]
Sleep Well? Sleep Much?
Sleep Much? Some people can sleep anywhere, anytime. We’re not all that lucky, however. Come share your story Wednesday, June 3rd.
Standing on the Sandy Knoll
Credit given to our members who generously attended, shared and added to the discussion, despite having lost their spouses. It couldn’t have been an easy meeting for them but they were gracious and their comments were valuable. THIS MEETING had at its core, the hot truth of the subject of caregivers. They are for the […]
Service Dogs for People with Parkinson’s?
If you’ve been around me this week, you know that I’m taking care of my son’s dog while he and his wife are away. This is a very mellow dog under most circumstances. I mean, look what he’s wearing! But that ‘s for another blog. This morning, I was feeling pretty “parky”. My balance wasn’t […]
Awareness + Acceptance = Empowerment
Wise words on how to continue the PD Awareness month. I like her Declaration of Acceptance. I may have to try me own. What would yours look like? A shout of thanks to Angela Robb who found this and pasted it on her blog for the Fairfax City Support Group.
In Sickness and In Health: Caring For Each Other
We are so lucky, many of us, to have a spouse or other close family member to act as caregiver. And there are many support groups, articles, books and advisers to tell these people how not to burn out so as to be useful to their spouses. For this post, however, we’re addressing spouses who are the […]